InclusiVibe Foundation advances diagnostic accuracy and systemic change for individuals with complex neurological and connective tissue conditions, through narrative art, empathy, and advocacy rooted in lived experience that builds the pathways this community has had to fight to find.
InclusiVibe Foundation is in its first year. We are building the infrastructure to serve a community that currently has no dedicated advocacy organization, no established care pathway, and no awareness month until we created one this June.
Our immediate needs:
Operational sustainability: Our team is entirely volunteer. Every dollar supports the tools, platforms, and systems that keep this foundation running, including our CRM, website, e-signature tools, insurance, and communication infrastructure.
Medical Advisory Board formalization: We have confirmed physicians ready to serve and our D&O insurance is in place. Funding supports the administrative infrastructure to formalize agreements, maintain compliance, and sustain the advisory relationships that give this foundation clinical credibility and guide our research and programming.
Patient experience research: Our Body of Evidence Survey, developed in collaboration with Indiana University, will document diagnostic delay and psychiatric misattribution across this patient population. Funding supports instrument development, IRB processes, and REDCap survey infrastructure.
Clinical empathy programming: Our ConcertStories program uses commissioned music and patient narrative to measurably improve provider empathy. Funding supports the pilot development, the Jefferson Scale of Empathy measurement, and the artistic team.
Awareness month expansion: We created a free Proclamation Toolkit that communities across the country are already using. Funding supports continued outreach, community engagement, and the creative campaigns that keep this population visible.
We are small, we are growing, and every dollar goes directly toward building something this community has never had.
InclusiVibe Foundation was founded by a quadriplegic patient who experienced years of diagnostic delay, psychiatric misattribution, and medical dismissal because of the complexity of her conditions. We exist because the healthcare system consistently fails patients whose connective tissue disorders cause serious neurological injury, with research documenting an average diagnostic delay of more than 14 years.
Our community includes people across races, ethnicities, genders, ages, and socioeconomic backgrounds. These conditions do not discriminate, but access to diagnosis and treatment does. Patients with fewer resources, less medical literacy, or less ability to self-advocate face even longer delays and worse outcomes. Our organization is led by a disabled, Asian American, immigrant woman. Our board and volunteer team reflect the diversity of the community we serve. 'Nothing about us without us' is not a slogan. It is how every program is designed, every decision is made, and every voice is centered.
Organization name
Inclusivibe Foundation
Causes
Arts & Humanities
Operating Budget
$100,000 - $249,999
Counties Served
Hunt, Wise, Tarrant, Somervell, Rockwall, Parker, Palo Pinto, Navarro, Montague, Kaufman, Johnson, Hood, Grayson, Fannin, Erath, Ellis, Denton, Dallas, Cooke, Collin
BIPOC Leadership
Executive Director/CEO
Address
3200 W WINDSOR DR APT 2101